{"id":1082,"date":"2025-12-23T17:27:28","date_gmt":"2025-12-23T17:27:28","guid":{"rendered":"https:\/\/wickedsister.evit.com.au\/index.php\/2025\/12\/23\/wishes-a-story-and-a-hymn-ms-style\/"},"modified":"2025-12-23T17:27:28","modified_gmt":"2025-12-23T17:27:28","slug":"wishes-a-story-and-a-hymn-ms-style","status":"publish","type":"post","link":"https:\/\/wickedsister.evit.com.au\/index.php\/2025\/12\/23\/wishes-a-story-and-a-hymn-ms-style\/","title":{"rendered":"Wishes, A Story and a Hymn, MS Style"},"content":{"rendered":"<h4 class=\"gb-headline gb-headline-a3416ba4 gb-headline-text\">A little <strong>MS<\/strong> holiday card for you<\/h4>\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><a href=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/merry-4684006_640-1.jpg\"><img loading=\"lazy\" decoding=\"async\" width=\"320\" height=\"234\" src=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/merry-4684006_640-1.jpg\" alt=\"\" class=\"wp-image-7043\" style=\"width:261px;height:auto\" \/><\/a><\/figure>\n<\/div>\n<p>Merry Christmas!<\/p>\n<p>Blessed Hanukkah!<\/p>\n<p>Joyous Kwanzaa!<\/p>\n<p>And a most Happy 2026 to all of you!!!<\/p>\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><a href=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/thank-you-9975798_640.jpg\"><img loading=\"lazy\" decoding=\"async\" width=\"320\" height=\"292\" src=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/thank-you-9975798_640.jpg\" alt=\"\" class=\"wp-image-7044\" style=\"width:202px;height:auto\" \/><\/a><\/figure>\n<\/div>\n<p>As happens far too often, like every year, the holidays have snuck up on me yet again. I am so very thankful to all of you, my readers and appreciate you immensely. I am sorry that I do not have a new <strong>MS<\/strong> humor blog to share with you this year but I am thinking of all you.<\/p>\n<p>Since I am not able to send each and every one of you a card or a holiday letter, I am posting an old blog that has become quite popular. <\/p>\n<p>That didn&#8217;t seem enough, so I also wanted to share this very short, happy but only a little funny, story of something that happened to me as I began Advent, the celebration that welcomes Christmas for me and many others. I don&#8217;t think you need to celebrate the Christian version of the holidays to appreciate it. <\/p>\n<p>Read on for the story and then the former blog, the 12 Days of Christmas, MS Style.<\/p>\n<p>Whatever you are celebrating right now, I wish you the very best. <\/p>\n<p><strong>Be the light you want to see in our world.<\/strong><\/p>\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><a href=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/christmas-background-1926414_640-1.jpg\"><img loading=\"lazy\" decoding=\"async\" width=\"320\" height=\"196\" src=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/christmas-background-1926414_640-1.jpg\" alt=\"\" class=\"wp-image-7045\" style=\"width:292px;height:auto\" \/><\/a><\/figure>\n<\/div>\n<h4 class=\"gb-headline gb-headline-40a1e922 gb-headline-text\">An Advent Story<\/h4>\n<p>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; This year there seems to be a lot of division, sadness and economic woes in our world. I figured my best defense to get all possible beauty out of the holiday season was to totally, truly, wholly (or holy) commit to the reason for the season. This Christmas, I vowed, beyond the gifts given and received, the shopping, the sweet treats, and the chaos, the birth of Jesus and the individual spiritual preparation for his return would be my focus. This should be the case every year and I try. But in 2025, I wanted to be consumed by this focus, first and foremost.<\/p>\n<p>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; I started my plan by attending Mass for the first Sunday of Advent at my local church.&nbsp; Just before the Mass started, a family of four came and sat in the pew directly in front of me. A dad holding a baby girl about six months old and a mom with a two-year-old son settled themselves for the next hour or so. The children were good and it was hard not to notice them. They both stayed quiet as they looked around, observing their vibrant surroundings.&nbsp;<\/p>\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><a href=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/baby-933097_640-1.jpg\"><img decoding=\"async\" loading=\"lazy\" width=\"320\" height=\"226\" src=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/baby-933097_640-1.jpg\" alt=\"\" class=\"wp-image-7046\" style=\"width:263px;height:auto\" \/><\/a><\/figure>\n<\/div>\n<p>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; The deacon was in the middle of his homily and was sharing with the parishioners how to make the most of this Advent season in ways both large and small. He said that even something as simple as introducing yourself to neighbors you haven\u2019t met yet could be a beautiful benefit to you both. In the seconds that he finished that sentence but before he had time to begin his next one, the baby in front of me began to babble. Loudly. And with a huge smile on her face. The whole church could clearly hear her, and the timing was so spot on, it HAD to be divine. So perfect. Even the deacon himself thought so. While everyone smiled and outright laughed, he said, \u201cwell it seems like someone is already taking my advice!\u201d<\/p>\n<p>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; It was a moment we all shared, driven by one child who had no idea the impact she was making for everyone at that precious moment.<\/p>\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><a href=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/baby-jesus-3007032_640-1.jpg\"><img decoding=\"async\" loading=\"lazy\" width=\"320\" height=\"214\" src=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/baby-jesus-3007032_640-1.jpg\" alt=\"\" class=\"wp-image-7047\" style=\"width:297px;height:auto\" \/><\/a><\/figure>\n<\/div>\n<p>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; The candle lit for the first week of Advent is for hope and this scene did fuel hope. The sound of this one child brought hope in the memory of another child born on a cold, lonely night, 2000 plus years ago. But it also echoed the candle lit for the third week of Advent, the one for joy, joy in a struggling world. For while it was a silly moment, it was a major moment. It was a moment I cling to when I falter in my 2025 Christmas commitment, become annoyed when things don\u2019t go right or when the news of the world is completely overwhelming me and bringing me down. The timing of a baby babbling is exactly what the deacon was talking about in his homily. This small incident did bring hope and spread lasting, much needed joy\u2026It was a beautiful benefit.&nbsp;<\/p>\n<p>And now, the blog&#8230;&#8230;<\/p>\n<h4 class=\"wp-block-heading has-text-align-center\"><strong>12 Days of Christmas, MS Style<\/strong><\/h4>\n<p>A multiple sclerosis Christmas carol<\/p>\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><a href=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/sheet-music-8398449_640-1.jpg\"><img decoding=\"async\" loading=\"lazy\" width=\"211\" height=\"320\" src=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/sheet-music-8398449_640-1.jpg\" alt=\"\" class=\"wp-image-7048\" style=\"aspect-ratio:0.6594081110705151;width:160px;height:auto\" \/><\/a><\/figure>\n<\/div>\n<p>I love Christmas.&nbsp;<\/p>\n<p>I love Christmas songs.&nbsp;&nbsp;<\/p>\n<p>But personally, I don\u2019t love the <strong>12 Days of Christmas<\/strong> carol.&nbsp; I find it obnoxious.&nbsp; Recently however, I learned that it was actually an important and secret song.&nbsp;<\/p>\n<p>Folklore has it, that this carol was written in the late 1700\u2019s in England as a code to help children study their catechism as Christianity was forbidden at the time.&nbsp; A partridge in a pear tree represents Jesus Christ, two calling birds represent the apostles Peter and Paul, three French hens represent the Holy Trinity, etc.&nbsp;<\/p>\n<p>Weird, as my grandmothers always taught me that the Holy Trinity was Portuguese not French, but what can you do?<\/p>\n<p>As a devout Catholic who totally gets the reason for the season, I feel bad calling the song obnoxious when is seems like it should be something to be appreciated, even just slightly.&nbsp;<\/p>\n<p>Kind of like how there was a brief time when I actually appreciated <strong>multiple sclerosis<\/strong>.&nbsp; And by brief I mean minutes, no, actually seconds.&nbsp;<\/p>\n<p>This was when I received my diagnosis after I had diagnosed myself via the internet as having either early onset Alzheimer\u2019s disease or acute and untreatable insanity.&nbsp; <strong>MS<\/strong> was actually a relief at that moment.&nbsp;<\/p>\n<p>Now it is just absolutely obnoxious and that is on one of its very rare good days.<\/p>\n<p>Since I am in the Christmas spirit all year long (but now that it IS Christmas, it is ok to be in the Christmas spirit) I thought I would combine the two.&nbsp;<\/p>\n<p>So here friends, is a <strong>multiple sclerosis<\/strong> Christmas carol, obnoxiousness and all.<\/p>\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><a href=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/hummel-figure-3882874_640-1.jpg\"><img decoding=\"async\" loading=\"lazy\" width=\"214\" height=\"320\" src=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/hummel-figure-3882874_640-1.jpg\" alt=\"\" class=\"wp-image-7049\" style=\"width:182px;height:auto\" \/><\/a><\/figure>\n<\/div>\n<p>On the first day of Christmas <strong>MS<\/strong> brought to me: one ach-y bod-y<\/p>\n<p>On the second day of Christmas <strong>MS<\/strong> brought to me: fingers all tingly<\/p>\n<p>On the third day of Christmas <strong>MS<\/strong> brought to me: &nbsp;three MS hugs<\/p>\n<p>On the fourth day of Christmas <strong>MS<\/strong> brought to me: lots of blurry vision<\/p>\n<p>On the fifth day of Christmas <strong>MS<\/strong> brought to me: brain completely spacey\u2026..<\/p>\n<p>On the sixth day of Christmas <strong>MS<\/strong> brought to me: every day so sleepy<\/p>\n<p>On the seventh day of Christmas <strong>MS<\/strong> brought to me: feeling kind of dizzy<\/p>\n<p>On the eight day of Christmas <strong>MS<\/strong> brought to me: bladder very leaky<\/p>\n<p>On the ninth day of Christmas <strong>MS<\/strong> brought to me: four shots so nasty<\/p>\n<p>On the tenth day of Christmas <strong>MS<\/strong> brought to me: head feeling crappy<\/p>\n<p>On the eleventh day of Christmas <strong>MS<\/strong> brought to me: legs acting lazy<\/p>\n<p>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; On the twelfth day of Christmas <strong>MS <\/strong>brought to me: balance not so steady-<\/p>\n<p>legs acting lazy, head feeling crappy, four shots so nasty, bladder very leaky, feeling kind of dizzy, every day so sleepy, brain completely spacey, lots of blurry vision, three MS hugs, fingers all tingly, and&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; one, ach-y bod-y\u2026..<\/p>\n<p>Let\u2019s sing it together, shall we?&nbsp;<\/p>\n<p>NOT!<\/p>\n<p>Ahhh friends, a very healthy and Merry Christmas to you all.&nbsp;<\/p>\n<p>And for my non- Christian friends, may you have a healthy and happy season of all things good and not <strong>MS<\/strong> related!<\/p>\n<p>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; &nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; *******Note*******<\/p>\n<p>I wrote this particular blog over the weekend of 12\/13\/13-12\/15\/13- I swear I did.&nbsp; On 12\/18\/13 a friend and fellow MS\u2019er posted on <strong>Facebook<\/strong> something similar that was attributed to the <strong>Must Stop MS Support Group<\/strong>.&nbsp;<\/p>\n<p>I am very, very sure I didn\u2019t copy them but it is possible that in years past I got this idea (the <strong>12 Days of Christmas<\/strong> <strong>MS<\/strong> version) from somewhere else and just don\u2019t remember it.&nbsp;&nbsp;<\/p>\n<p>I would like to think instead, however, that great minds think alike!&nbsp;<\/p>\n<p>If that doesn\u2019t work, I will blame using an idea used before on <strong>MS<\/strong>.&nbsp;<\/p>\n<p>Yea, that\u2019s it.&nbsp; If I subconsciously stole this idea it is all <strong>MS\u2019<\/strong>s fault!<\/p>\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><a href=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/sylvester-3038086_640-1.jpg\"><img decoding=\"async\" loading=\"lazy\" width=\"320\" height=\"214\" src=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/sylvester-3038086_640-1.jpg\" alt=\"\" class=\"wp-image-7050\" style=\"width:270px;height:auto\" \/><\/a><\/figure>\n<\/div>\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><a href=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/heart-1398286_640-1.jpg\"><img decoding=\"async\" loading=\"lazy\" width=\"320\" height=\"214\" src=\"https:\/\/yvonnedesousa.com\/wp-content\/uploads\/2025\/12\/heart-1398286_640-1.jpg\" alt=\"\" class=\"wp-image-7051\" style=\"width:262px;height:auto\" \/><\/a><\/figure>\n<\/div>\n<p><em>Source: <a href=\"https:\/\/yvonnedesousa.com\/wishes-a-story-and-a-hymn-ms-style\/\" rel=\"nofollow noopener\" target=\"_blank\">yvonnedesousa.com<\/a><\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>A little MS holiday card for you Merry Christmas! Blessed Hanukkah! Joyous Kwanzaa! And a most Happy 2026 to all of you!!! As happens far too often, like every year, the holidays have snuck up on me yet again. I am so very thankful to all of you, my readers and appreciate you immensely. I&#8230;<\/p>\n","protected":false},"author":0,"featured_media":1083,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[11,15,9,8,13,14,12,10],"class_list":["post-1082","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-multiple-sclerosis-research","tag-brain-repair","tag-marburg-type-ms","tag-ms","tag-multiple-sclerosis","tag-myelin","tag-neuroregeneration","tag-oligodendrocyte","tag-remyelination"],"_links":{"self":[{"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/posts\/1082","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/comments?post=1082"}],"version-history":[{"count":0,"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/posts\/1082\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/media\/1083"}],"wp:attachment":[{"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/media?parent=1082"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/categories?post=1082"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/tags?post=1082"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}