{"id":1086,"date":"2025-12-24T20:08:23","date_gmt":"2025-12-24T20:08:23","guid":{"rendered":"https:\/\/wickedsister.evit.com.au\/index.php\/2025\/12\/24\/learning-and-dancing-the-steps-of-caregiving-together\/"},"modified":"2025-12-24T20:08:23","modified_gmt":"2025-12-24T20:08:23","slug":"learning-and-dancing-the-steps-of-caregiving-together","status":"publish","type":"post","link":"https:\/\/wickedsister.evit.com.au\/index.php\/2025\/12\/24\/learning-and-dancing-the-steps-of-caregiving-together\/","title":{"rendered":"Learning and dancing the steps of caregiving together"},"content":{"rendered":"<p class=\"\">Caregiving couples like Jennifer and me perform a dance every day that no one ever teaches you.<\/p>\n<p class=\"\">There\u2019s no studio. No choreography sheet. No one calling out the counts. And yet, somehow, we learn the steps through repetition, trust, and a ton of trial and error.<\/p>\n<figure class=\"wp-block-image alignright size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" data-recalc-dims=\"1\" width=\"870\" height=\"580\" src=\"https:\/\/i0.wp.com\/acoupletakesonms.com\/wp-content\/uploads\/2025\/12\/IMG_4489.jpg?resize=870%2C580&#038;ssl=1\" alt=\"\" class=\"wp-image-11255\" style=\"aspect-ratio:1.5000559409263818;width:572px;height:auto\" \/><figcaption class=\"wp-element-caption\">Photo by Emily Mesner<\/figcaption><\/figure>\n<p class=\"\">Honestly, it probably deserves a name.<\/p>\n<p class=\"\">Ballroom and line dances have already claimed words like <em>two-step<\/em>, <em>pivot<\/em>, <em>twist,<\/em> and <em>swing<\/em>. But <strong><a href=\"https:\/\/msfocus.org\/Magazine\/Magazine-Items\/Posted\/MS-and-Caregiving\" target=\"_blank\" rel=\"noreferrer noopener\">caregiving<\/a><\/strong> introduces a distinct category of movement born of necessity and shaped by love. Add the word \u201ccaregiving\u201d to a few familiar dance steps, and you could build an entirely new dance catalog.<\/p>\n<p class=\"\">Because what we do isn\u2019t random. It\u2019s practiced. It\u2019s intentional. And for couples navigating disability together, it\u2019s often the most important dance of the day.<\/p>\n<p class=\"\">For Jennifer and me, that dance is most clearly visible during transfers \u2014 those moments when she moves from her power wheelchair to wherever life needs her next.<\/p>\n<p class=\"\">Here\u2019s how it usually goes:<\/p>\n<p class=\"\">I line my body up with hers and stagger my stance so we\u2019re balanced. I bend my knees until our eyes meet. I slide my arms beneath hers, link my hands behind her back, and pull us close together. Yes, so close that we can feel each other breathe.<\/p>\n<p class=\"\">Then I count. \u201cOne\u2026 two\u2026 three.\u201d<\/p>\n<p class=\"\">On \u201cthree,\u201d everything happens at once.<\/p>\n<p class=\"\">I lift with my legs. Jennifer braces and engages what she can. We hold on tight \u2014 for stability, for reassurance, and because this is not the moment to let go. <\/p>\n<p class=\"\">Once she\u2019s standing and steady, we pivot together toward the next destination: the shower chair, the toilet, the bed, the standing frame. Wherever the day calls for.<\/p>\n<p class=\"\">Simple? Maybe on paper. But in real life, it takes focus, communication, strength and complete trust. Miss a step and we\u2019re both literally on the floor.<\/p>\n<p class=\"\">So yes, it\u2019s a dance in every sense of the word.<\/p>\n<p class=\"has-palette-color-3-color has-text-color has-link-color has-medium-font-size wp-elements-567fb23a05b8f5912b7c735f8047931a\"><strong>The Caregiving Slide<\/strong><\/p>\n<p class=\"\">Transfers are a core part of many caregiving relationships involving disability. Thankfully, there are tools \u2014 <strong><a href=\"https:\/\/www.youtube.com\/watch?app=desktop&amp;v=O6qZ7tEXQZ4\" target=\"_blank\" rel=\"noreferrer noopener\">Hoyer lifts<\/a><\/strong>, standing frames, and transfer devices \u2014 designed to make those movements safer. Jennifer and I own them. We\u2019re grateful for them, and we use them when we need to.<\/p>\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"\">Caregiving isn\u2019t a solo performance. It\u2019s a partnership.<\/p>\n<\/blockquote>\n<p class=\"\">But for most of our <strong><a href=\"https:\/\/www.healthcentral.com\/condition\/multiple-sclerosis\/this-couple-navigates-ms-together\" target=\"_blank\" rel=\"noreferrer noopener\">more than 20 years of marriage<\/a><\/strong>, during which we\u2019ve also served as each other\u2019s primary caregivers while both living with MS, we\u2019ve relied on our own choreography.<\/p>\n<p class=\"\">Let\u2019s call it the <strong>\u201c<\/strong>Caregiving Slide.\u201d<\/p>\n<p class=\"\">This move works for us because it balances efficiency with intention. It enables Jennifer to engage her legs, even briefly, and remain an active participant in her movement. This matters deeply to her.<\/p>\n<p class=\"\">It matters to me, too.<\/p>\n<p class=\"\">The Caregiving Slide keeps my legs strong, my back engaged, and my arms working. It reminds me that caregiving is physical work and that my body is just as much a part of this partnership as my heart is.<\/p>\n<p class=\"\">At the same time, we\u2019re not na\u00efve. We know bodies change. We know MS is unpredictable. We also know that what works today may not work forever.<\/p>\n<p class=\"\">That\u2019s why we plan. That\u2019s why we adapt. And that\u2019s why I take responsibility for caring for myself seriously; not out of pride or stubbornness, but out of love.<\/p>\n<p class=\"has-palette-color-3-color has-text-color has-link-color has-medium-font-size wp-elements-4e62d481487c24b82c13cdfc1394635c\"><strong>Dancing forward one transfer at a time<\/strong><\/p>\n<p class=\"\">There is nothing selfish about a caregiver protecting their own strength. In fact, it\u2019s one of the most loving choices you can make.<\/p>\n<p class=\"\">Jennifer needs me for more than the six steps of the Caregiving Slide. She also needs me steady, healthy, informed and present for today and for the years ahead. That means managing my MS, respecting my limits, and staying open to new tools as our needs evolve.<\/p>\n<p class=\"\">Caregiving isn\u2019t a solo performance. It\u2019s a partnership. And like any good dance, the tempo changes over time. Some days it\u2019s smooth. Some days it\u2019s awkward. Some days we miss the beat entirely.<\/p>\n<p class=\"\">We keep showing up. Because even when the music is quiet and no one\u2019s watching, we still know the steps.<\/p>\n<p class=\"\">And for as long as we can, Jennifer and I will keep dancing together.<\/p>\n<p><em>Source: <a href=\"https:\/\/acoupletakesonms.com\/learning-and-dancing-the-steps-of-caregiving-together\/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=learning-and-dancing-the-steps-of-caregiving-together\" rel=\"nofollow noopener\" target=\"_blank\">acoupletakesonms.com<\/a><\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Caregiving couples like Jennifer and me perform a dance every day that no one ever teaches you. There\u2019s no studio. No choreography sheet. No one calling out the counts. And yet, somehow, we learn the steps through repetition, trust, and a ton of trial and error. Photo by Emily Mesner Honestly, it probably deserves a&#8230;<\/p>\n","protected":false},"author":0,"featured_media":1087,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[11,15,9,8,13,14,12,10],"class_list":["post-1086","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-multiple-sclerosis-research","tag-brain-repair","tag-marburg-type-ms","tag-ms","tag-multiple-sclerosis","tag-myelin","tag-neuroregeneration","tag-oligodendrocyte","tag-remyelination"],"_links":{"self":[{"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/posts\/1086","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/comments?post=1086"}],"version-history":[{"count":0,"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/posts\/1086\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/media\/1087"}],"wp:attachment":[{"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/media?parent=1086"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/categories?post=1086"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wickedsister.evit.com.au\/index.php\/wp-json\/wp\/v2\/tags?post=1086"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}