In recognition of Multiple Sclerosis Awareness Month in March, the MS Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by MS, written in their own words. Follow us on Facebook, Instagram, X, and Pinterest for more stories like this, using the hashtag #MSAwarenessMonth, or read the full series….
Anti-CD20 in the Middle East
Tweet Rituximab is a WHO MS essessential medicine yet it is not approved for use in MS and not re-imbursed by NHS England. There are three approved anti-CD20 with rituximab most similar to ocrelizumab in terms of dosing and its structure. It is given at doses to kill B cells just like all the other…
What Artificial Intelligence has taught me about Multiple Sclerosis and stewardship
I’ve been thinking a lot lately about Artificial Intelligence. Not just what it can do, but what it costs. Living with Multiple Sclerosis means my energy is limited, and some days my brain or body simply refuses to cooperate the way I’d like it to. For people living with chronic illness or disability, tools like…
The C world needs funding
Tweet The C word….is often mentioned when it comes to MS…but proof-is in the pudding. If MS is an autoimmune condion and you know how to turn the immune system off you can silence autoimmunity…I have done it. But the isssue is how do you translate it into controling MS, when you don’t really know…
With MS, it’s important to address mental health early in the process
In recognition of Multiple Sclerosis Awareness Month in March, the MS Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by MS, written in their own words. Follow us on Facebook, Instagram, X, and Pinterest for more stories like this, using the hashtag #MSAwarenessMonth, or read the full series….
Challenges Are Endless
It has been a long time since I last wrote, and I have several reasons for finding it difficult. First, I have been experiencing vision issues. I do not understand the reason, but my vision is clear in the morning, but worsens as the day goes on. This has persisted for several weeks. I thought it was…
My journey with MS is unpredictable, yet driven by purpose
In recognition of Multiple Sclerosis Awareness Month in March, the MS Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by MS, written in their own words. Follow us on Facebook, Instagram, X, and Pinterest for more stories like this, using the hashtag #MSAwarenessMonth, or read the full series….
Fatigue..Are you tired of the lack of Progress in dealing with this?
Tweet As long as I can remember Fatigue has been a major issue for people with MS and it is a very underresearched and under-controlled sign of disease. This paper is a snap shot to see how badly we are dealing with it in the United Kingdom. It is online and free so you can…
The Power of Self-Advocacy: Finding Your Voice and Owning Your MS Journey
Self-advocacy is more than just a buzzword; it is the act of speaking up for yourself, clearly communicating your needs, and taking action to get what you want in life. At its core, it is about recognizing your own worth … Continue reading → Source: blog.mymsaa.org
MS study of genetic risk factors shows need for diverse data
While many genetic factors that increase the risk of multiple sclerosis (MS) are shared across ancestral backgrounds, a study identified a variant that may reduce MS risk in South Asian people, which had not been seen in European studies — suggesting that studies focusing mainly on people of European descent may miss less common genetic variants…