The month of February may be a shorter month, but it has left a few empty places in my heart. Of course, despite a couple of heartbreaking events that occurred during February, a few great things also happened. It is, as we have always heard, that you cannot have sunshine without darkness, and you cannot experience good without the bad. These…
MS: Feeling seen doesn’t always mean feeling heard
Despite this, I often refer to MS as a lonely illness. With a vast array of associated neurological and non-neurological symptoms spread over four different types of MS, it will be exponentially difficult to find someone who has the exact same symptoms with a similarly matching field of outcomes. Source: irelandms.com
Progressive Trials Need to consider Age
Tweet This study indicates that rates of brain atrophy are affected by age and that they should be considered. One thinks that would be wise, but one wonders what this would do to the powering of studies (i.e. how big they have to be to find a difference). Trials are difficult to recruit and take…
MS in older age is more likely to go Progressive
Tweet This morning I woke up like someone has been punching me in the arm all night and guess it is all related to neck problems but it is part of that dropping to bits as you get older thing. Toss on top of this multiple sclerosis and you have a neurodegenerative condition (MS) and…
ACTRIMS 2026: Mouse model mimics form of disability progression
Researchers have developed a mouse model designed to reflect the disability worsening that occurs in the absence of relapses for many people with multiple sclerosis (MS). The model shows key features of this form of disease worsening, known as progression independent of relapse activity (PIRA), including immune cell clusters in specific brain regions, nerve cell…
Virtual Friendships and Feeling Less Alone
When living with a chronic illness like multiple sclerosis, building a community for yourself of people who truly get it is incredibly valuable. Having a support network in your life of people who are there for you in easy times … Continue reading → Source: blog.mymsaa.org
Learning from other conditions
Tweet We can see the people making CD20 depleting antibodies and they want to position themselves versus the other antibodies and the other drugs. If you are a fantastic inhibitor of the immune response, it is likely that you will increase the risk of infection. Now the companies do their upmost to play down infection…
It’s been a minute
I’ve been missing from these pages and it feels like losing a limb. Words are usually more reliable for me. They don’t normally let me down. I don’t like it. I’ve lost interest in writing about my disease. It’s become boring to me. It never changes. It never gets any better. It barely gets any…
What I’ve learned from starting a new diet to better manage MS symptoms
Now that the holiday season, with all its decadent meals, is over, I wanted to share an update on the diet I mentioned in a column last September. At the time, I was still in the elimination phase of a FODMAP diet (which stands for fermentable oligosaccharides, disaccharides, monosaccharides, and polyols). Since then, I’ve gradually…
Heavy Weight On Shoulders
Happy Friday Eve, y’all! I hope you are doing well, and the week has treated you well. It has been a while since my last post, and I had promised myself I would write more, but too many things have gotten in the way. When I do write something, I am sharing it with others,…