I’m learning more and more about how the realities of my disabled life affect my psyche and leave me feeling traumatized. For many reasons, I am often left alone unplanned in very vulnerable positions. For example, during the day you’ll often find me sitting at me computer with my wheelchair turned off and my legs…
Gute Nachrichten: EMA genehmigt Tolebrutinib
Tweet Yep the good news is that the EMA has approved the French Drug for progressive MS. This a Brutons Tyrosine kinase inhibitor that the FDA pushed back on. Will this arrive and make it past NICE in the UK well it has to be approved by the MHRA first. I put the title up…
#MSThinkAgain
It’s the last day of MS Awareness Week with the campaign of #MSThinkAgain, which has been challenging all the assumptions that surround the condition, which just aren’t true. Every day this week, Dizzy and I have been considering the misconceptions we have encountered, and we have put together this little post to share them….
Taking Ownership: My Journey Toward Better Mental and Physical Wellness
By Samuel Fitch There comes a point where continuing the same patterns will only lead you further away from the life you actually want to live. For me, that moment wasn’t dramatic. It was quiet, but undeniable. Between living with … Continue reading → Source: blog.mymsaa.org
AAN 2026: Ocrevus treatment slows disability in advanced PPMS
Ocrevus (ocrelizumab) delayed disability progression and worsening hand function among a large group of people with primary progressive multiple sclerosis (PPMS), including those who were older and had more advanced disease. The data, which come from the Phase 3 ORATORIO-HAND trial (NCT04035005), were presented by Jiwon Oh, MD, a neurologist at the University of Toronto,…
AAN2026 Desclating High Efficacy DMT
Tweet I have been critical of neuros for using the escalating apporach to DMT and you us a higher efficacy drug after the failure of treatment. A strategy based on failure was always a flawed approach and you paid the price for reluctance of neuros/nurses to offer high efficacy treatment right from the get go….
Another BTKi for MS?
Tweet Recently we were talking about the hare and the tortoise and the first hares related to bruton tyrosine kinase irreversible inhibitors failed to beat teriflunomide in trials in relapsing MS. We then heard an reversible inhibitor was active and at that point I asked if one company was correct to bin their first effort…
I learn a new lesson about not feeling guilty when good things come my way
When I began this column about living with multiple sclerosis (MS) nearly four years ago, I worried about sharing good things in my life and about comparing my situation with that of others. It made me feel guilty. After writing about it, though, the feedback I received from the MS community was so positive that…
Guest Voice: I’m riding 100 miles a month for the MS community
If I sit for over three minutes, it takes almost that long to regain movement in my legs when I stand. Even then, my limbs must fight the relentless pressure of immobility. Focused therapies, such as the Portable Neuromodulation Stimulator, have given me back years of lost function. Still, my multiple sclerosis (MS) rages on….
The reality of MS fatigue and its impact on daily life
Rafael Lara, who goes by Macho, shares his experience living with multiple sclerosis fatigue, including how it affects his daily routines, energy levels, and ability to spend quality time with his family while navigating life with MS. The post The reality of MS fatigue and its impact on daily life appeared first on Multiple Sclerosis…