In recognition of Multiple Sclerosis Awareness Month in March, the MS Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by MS, written in their own words. Follow us on Facebook, Instagram, X, and Pinterest for more stories like this, using the hashtag #MSAwarenessMonth, or read the full series….
Spotting MS..Can Technology Change the Ludites
Tweet The biggest issue to progress is the slow process and resistance to change and this can be seen in how the regulators assess efficacy and here for many years people have been fixated with the EDSS clinical assessment, This study looks at technology and they can distinguish people with neurological issues compared to people…
Caregivers deserve some more detailed exploration here
I’ve written here before about my use of caregivers to do the most basic tasks required in my life. The minute I wake up in the morning till the time I go to bed at night I am not alone. I require help for the most basic of tasks from getting up out of a…
Trial of CAR T-cell therapy for progressive MS now recruiting in US
A Phase 1 clinical trial testing azercabtagene zapreleucel (azer-cel), TG Therapeutics’ CAR-T-cell therapy, in progressive forms of multiple sclerosis (MS) is now recruiting participants at eight sites across the U.S. The study (NCT06680037) is expected to enroll up to 32 adults with primary progressive MS or secondary progressive MS to determine whether genetically engineered immune…
The ‘pre-flight safety checklist’ applies to both MS patients and caregivers
It’s been a few years since I’ve traveled in an airplane. Flying commercially when you depend on a wheelchair for locomotion is apparently quite the nightmare. Between that and all the accessories I travel with, as long as the distance is reasonable, I’d rather just drive. The fact that I haven’t had anywhere to go…
Vitamin D supplementation shows mixed effects in new MS meta-analysis
Low to moderate doses of vitamin D supplements may be linked to lower relapse rates in people with multiple sclerosis (MS), according to a new meta-analysis of clinical trials. Higher doses did not show the same benefit, and vitamin D supplementation overall did not significantly change disability scores. “Based on these findings, vitamin D supplementation (preferably…
Pain and relief: My MS diagnosis finally gave me answers
In recognition of Multiple Sclerosis Awareness Month in March, the MS Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by MS, written in their own words. Follow us on Facebook, Instagram, X, and Pinterest for more stories like this, using the hashtag #MSAwarenessMonth, or read the full series….
Relapses after pregnancy on natalizumab
Tweet Subcutaneous natalizumab is delivered under the skin at the same dose as giving it into the blood. This means not as much gets into the blood and here there is a suggestion that it may not be as effective when used during pregnancy Risk of postpartum disease activity with subcutaneous versus intravenous Natalizumab in…
Long-term air pollution exposure may increase risk of developing MS: Study
Long-term exposure to air pollution may increase the risk of developing multiple sclerosis (MS), while short-term exposure may worsen disease activity and disability in people who already have the condition, according to a new study. “Long-term air pollution exposure was associated with higher MS risk, and short-term exposure with greater disease severity,” researchers wrote, adding…
The silent grief I carry beneath the surface with MS
Living with multiple sclerosis (MS) is often described in medical terms — lesions, relapses, progression curves, and other jargon — that don’t always register in my mind. But a diagnosis is also associated with grief, a quieter and oftentimes silent reality that doesn’t hit all at once, but is instead slow and shapeshifting, settling into…