El proper dimarts 17 de juny a les 11 h, Gracare i Fundació GAEM organitzem una jornada formativa centrada en la bipedestació i el seu paper fonamental en la rehabilitació de les persones amb esclerosi múltiple. L’acte es podrà seguir online o presencialment al centre Gracare (Entença, 165, Barcelona). Sota el títol “Bipedestació i Esclerosi Múltiple:…
Month: May 2025
New Way to Shower, Another Look at Shower Time
Post foot surgery and non-weight bearing status in April, I had to get a tub bench. At first it was kind of cool. Being generally lazy, the idea of sitting down to take a shower seemed pretty lovely. But eventually it got old and now I’m eager to take my showers like a normal person….
Alone again, naturally
I can remember a time when being alone with my favorite thing. It was my idea of a perfect day to spend it by myself. I was my own best company.Then I became significantly disabled and requiring of a caregivers help 24/7 and being alone became a thing of the past. I thought I would…
Planning for a Future with MS
Planning for a Future with MS – Whether it’s financial concerns, medical decisions, or preparing children for life with MS in the family. Source: www.life-in-spite-of-ms.com
Balancing Responsibilities and Childhood
Balancing Responsibilities and Childhood, older children may feel responsible for helping their parent while juggling school, extracurriculars, and social lives Source: www.life-in-spite-of-ms.com
30 de maig de 2025: Dia Mundial de la Esclerosis Múltiple
A Espanya, l’Esclerosi Múltiple (EM) afecta més de 55.000 persones, una xifra que ha crescut un 20% en els darrers cinc anys. Cada any es diagnostiquen uns 2.500 casos nous, i el 75% de les persones que conviuen amb aquesta malaltia són dones. L’EM és una patologia neurològica crònica, impredictible i, en molts casos, invisible….
Children of Parents with MS
Children of parents with MS often develop resilience and empathy early in life. They may take on caregiving roles and learn to be flexible along the way. Source: www.life-in-spite-of-ms.com
Communication is The Key to Strengthening Bonds
Communication is The Key to Strengthening Bonds – Discussing MS openly helps everyone process the changes and understand what to expect. Source: www.life-in-spite-of-ms.com
Navigating Everyday Family Life with MS
Navigating everyday family life with MS includes how families juggle daily tasks when MS symptoms vary. Assigning roles, utilizing support systems and more. Source: www.life-in-spite-of-ms.com
What’s the worst thing about falls?
Since the launch of memoir Fallosophy (March, 2025), I’ve fallen three times. Not metaphorically. Literally. On the ground. Boom. My first fall happened just a few hours before the Fallosophy launch party. Because of course it did. Ard-dramatically. While getting ready for my big night I tripped on air then landed face first (then bicep,…