This never-ending pain. This constant sorrow. When it finally registers to you that grief has come home, and she sits herself down on your heart it almost feels like relief. You’ve been here before. It almost feels like home. Funny concept that one. Home. It’s where the heart is, correct? Or is it where your…
Month: June 2025
Calor extrema i esclerosi múltiple: com protegir-se de les altes temperatures
Amb l’arribada de l’estiu i l’increment de les onades de calor, moltes persones amb esclerosi múltiple (EM) poden experimentar un empitjorament temporal dels seus símptomes. Aquest fenomen, conegut com a fenomen d’Uhthoff, no indica una progressió de la malaltia, però sí que pot afectar de manera significativa el benestar i la qualitat de vida. Des…
The Decimated Bush with Portuguese Roots
When MS combines with visiting your heritage It is Portuguese Heritage Month!! To celebrate, Annmarie came up with a last-minute idea to visit Fall River, MA and get our Portuguese on. I did have plans to go dancing the night before with another friend, but I figured I could handle both. Back in my younger…
If I didn’t have MS…
If I didn’t have MS… I would be working full-time and earning significantly more than I currently do with my … The post If I didn’t have MS… appeared first on . Living with a Progressive Chronic illness…. SPMS and My Body Image Source: trippingthroughtreacle.com
Una nova teràpia cel·lular mostra resultats esperançadors en l’esclerosi múltiple progressiva
Aquest mes de juny, durant el Congrés de l’Acadèmia Europea de Neurologia (EAN), la companyia IASO Bio ha presentat els primers resultats d’una nova teràpia cel·lular anomenada Equecabtagene Autoleucel (CT103A), en persones amb esclerosi múltiple progressiva, una forma de la malaltia que fins ara compta amb poques opcions de tractament. Aquesta teràpia pertany a les…
Wheelchair-related pain is killing me
I can’t really adequately express how much this pain is disrupting my life. It’s so intense. I’m quite certain nobody prepared me for this level of discomfort when I first became a full-time chair user. There should be resources dedicated to this topic but file it under “things nobody talks about” in the official disability…
An unwanted change of identity
The post An unwanted change of identity appeared first on Life on a Seesaw. That’s what it means to become disabled. It doesn’t matter how quickly it happens. Whether you become disabled overnight in an accident or you spend years slowly declining. There always comes a moment when it hits you really hard: the person…
Finding a book agent is tough business
Trying to bring Bethy Bright and Dark the memoir to life is rough, readers. I’m committed, sure I am, but sitting at my computer querying agents all day is taking a toll on my body. Pain. That’s the killer. Pain from my ass in my wheelchair all damn day or pain from my compression socks…
Can Hypnosis Help Manage MS Symptoms?
Paid partnership: this review is part of a sponsored collaboration with Reveri. All thoughts and experiences are my own. Can hypnosis help manage MS symptoms? I tried it live with Dr. Spiegel. Figuring out how to manage MS symptoms sometimes means dipping my toe into unconventional waters. While I’m not going anywhere near bee-sting therapy,…
Navigating pomp and unexpected circumstances
Kudos to Wartburg College for exemplifying the leadership and adaptive change it taught and instilled in me as a graduate student these past 20 months. The MA in Leadership hooding ceremony program was already printed with me as the class speaker. I was among the eight students enrolled in the third cohort of its online…