Tweet I have been critical of neuros for using the escalating apporach to DMT and you us a higher efficacy drug after the failure of treatment. A strategy based on failure was always a flawed approach and you paid the price for reluctance of neuros/nurses…
Tweet Recently we were talking about the hare and the tortoise and the first hares related to bruton tyrosine kinase irreversible inhibitors failed to beat teriflunomide in trials in relapsing MS. We then heard an reversible inhibitor was active and at that point I asked…
When I began this column about living with multiple sclerosis (MS) nearly four years ago, I worried about sharing good things in my life and about comparing my situation with that of others. It made me feel guilty. After writing about it, though, the feedback…
If I sit for over three minutes, it takes almost that long to regain movement in my legs when I stand. Even then, my limbs must fight the relentless pressure of immobility. Focused therapies, such as the Portable Neuromodulation Stimulator, have given me back years…
Rafael Lara, who goes by Macho, shares his experience living with multiple sclerosis fatigue, including how it affects his daily routines, energy levels, and ability to spend quality time with his family while navigating life with MS. The post The reality of MS fatigue and…
The experimental drug fenebrutinib was shown to significantly outperform Aubagio (teriflunomide), an approved therapy, in reducing relapses and MRI markers of disease activity in people with relapsing forms of multiple sclerosis (MS). That’s according to new data from a pair of largely identical Phase 3…
A team of scientists in China, attempting to understand the function of a genetic mutation commonly found in animals living at high altitudes, discovered a previously unknown mechanism key to myelin repair. The discovery could have important implications for diseases such as multiple sclerosis (MS),…
Tweet I have been taken to task out my slipshod use of statistics and suggested about 50% get disease control after two doses and about 50% after three doses so that with three doses about 75% of people get control. Yep I have not referenced…
I am not broken because my body feels anxious, tight, or out of control. My body is doing exactly what it was designed to do: protect me. For most of my life, I didn’t understand what was happening inside of me. I just knew I…
I have written about how much I enjoyed helping my grandma tend to her garden as a child, in the years before I was diagnosed with relapsing-remitting multiple sclerosis. She instilled in me a great love for plants and for being outdoors. But with multiple…