Category: Multiple Sclerosis Research

Shout out to everyone who didn’t go outside today. Or yesterday. Or tomorrow. While I’m at home asking ChatGPT to clarify whether I’m a hermit or a recluse, The Banker lives a whole life outside of our apartment just to come home and find me flaked out on the couch where he left me. (TB:…

A Better Way to Measure MS Progression The Buffalo Neuroimaging Analysis Center (BNAC) is a world-class center for MS research. As with all academic research, however, it can be difficult for patients to read and understand their published reports.  I’m on the Patient Advisory Council for BNAC, and we have embarked on an effort to…

Who the FUCK am I?!?!? What the FUCK is the point of my life?!?!? I feel like I have been thrown into an existential crisis. Since losing the ability to walk, and the ability to do many of the things I enjoy due to Multiple Sclerosis, I often question who I am and what my…

….. is really, really difficult. I wasn’t sure how to start this blog post. I could start by saying sorry … The post Living with a Progressive Chronic illness…. appeared first on . 6 Tips to Keep Working at Your Health Goals – Despite Living with Chronic Illness Source: trippingthroughtreacle.com

Thoughts on Inspiration I don’t want to be an inspiration. I only want to inspire. If you exhibit visible MS symptoms then someone, somewhere, sometime may have called you an “inspiration.” I’ve been called worse, but I still don’t like it… To read my full blog post at MultipleSclerosis.net, click here. get the latest blog posts…

 Phase 2 data published in NEJM show potential of frexalimab as high-efficacy therapy in relapsing MS High-dose frexalimab significantly reduced disease activity, demonstrating 89% reduction in new brain lesions Phase 3 trials in relapsing MS and non-relapsing secondary progressive MS currently underway Paris, February 15, 2024. The New England Journal of Medicine published results from a positive Phase…

I am in total amazement that my disfunctional body grew a baby. With so many uncertainties from the conception, and my body already having lost so much function, it truly feels like the womb and nervous system operate entirely separately. The caesarean went well (the hardest part being holding my body in position for the…