Tweet Yesterday we had CD20-depleting antibodies switch after alemtuzumab works well and today it is a switch from fingolimod. Fingolimod is a strange drug because it hangs around a long time and when the drug wears of there is the potential for relapse = rebound Now it have been suggested that relapse occurs more frequently…
Category: Multiple Sclerosis Research
A night on the dance floor reminded me of the power of seeking joy
At 50, I’m realizing there are a lot of things I’ve stopped doing: nightclubs, late nights, obsessing over my hair, changing my outfit three times before leaving the house, staring at my phone waiting for a boy to call, and caring way too much about what other people think. That’s the beauty of aging, and…
❄️Done With ICE!🧊
Happy Friday to an amazing group of people whose thoughts I value. I hope you have been doing well. I know it has been a while since my last post, but sometimes life struggles get in the way of writing, especially when it comes to writing something optimistic. Of course, not working has taken a…
For people with MS, walking is about more than getting from A to B
For people with multiple sclerosis (MS), difficulty walking is not just about physical limitations. It is also shaped by emotions, social interactions, and how easily people can take part in everyday life, a review study found. The findings highlight the many factors that can negatively affect walking in MS, and the need for broader efforts…
NICE and natalizumab in England..or should it be called Poundland?
Tweet There has been lot of discussion about reference (originator) natalizumab and biosimilar natalizumab and some people have been claiming that the biosimilar, after they were switched, does not work as well and they have been quite vocal causing some places to switch back. This switch was dictated by NICE because they had done a…
Living with MS, I feel suppressed, even neutralized, but never destroyed
I said I would try not to overwhelm you with tales from my past in the military. For the most part, I’ve been true to my word, but something crossed my mind recently that made me think immediately of multiple sclerosis (MS), and I couldn’t resist sharing it. As with all of my columns that…
Cleveland Clinic program empowers MS patients to manage daily stress
A brief, four-session stress management program created by the Cleveland Clinic is helping people with multiple sclerosis (MS) significantly reduce their depression and anxiety. By using real-time biofeedback and mindfulness, the streamlined protocol offers patients a practical way to reclaim some control over their emotional and physical health without spending time or energy on traditional,…
MS patients report feeling better after a year of biosimilar treatment
People with multiple sclerosis (MS) reported improvements in physical and mental quality of life along with reduced depression after one year of treatment with an ocrelizumab biosimilar, according to a small study conducted in Iran. The observational study followed 30 adults with MS who received Xacrel, an ocrelizumab biosimilar approved in Iran, and assessed patient-reported…
You Spin Me Right Round, Baby Right-Round
Tweet Yep this is a lyric from some song that Sid no doubt used to listen/bop to when they were a kid. However, spin is sadly something that happens with trial papers Mascareñas-García M, Rivero-de-Aguilar A, Candal-Pedreira C, García G, Guerra-Tort C, Martín-Gisbert L, Rey-Brandariz J, Ríos MP, Casal-Acción B, Santiago-Pérez MI, Varela-Lema L. Distortion…
The Power of Intentions Over Traditional Goal Setting
By: Dr. Eva Jackson Rethinking Goal Setting in Our Community For the past 15 years, members of my community have routinely organized vision board parties toward the end of the year or at the start of the new year, with … Continue reading → Source: blog.mymsaa.org