Plovers again, but for sharks In case you have been under a rock the last two months, you likely know that the movie classic Jaws is 50 years old this summer! I celebrated with a shark party at my apartment complex where I won a cool prize in the fishing contest- this Jaws mug!! I…
Category: Multiple Sclerosis Research
Presentem la Memòria Anual 2024: un any clau de renovació i compromís amb la investigació biomèdica
La Fundació GAEM ha publicat la Memòria Anual 2024, un exercici que ha estat marcat per la reformulació interna, l’impuls a projectes d’alt impacte científic i el creixement de la seva comunitat de persones sòcies, que ja supera el miler. El 2024 ha estat un any de transformació estratègica. Amb una nova pàgina web més…
Defying MS odds with help from Barenaked Ladies
“We have no choice in how MS will affect our lives, but we do have the ability to stay in the game and play the cards we are dealt. Sure, this can involve some bluffing and making it look easier than it really is, but it’s important to continue showing up and playing each day…
The shameful things I do
I have an obsession around bodily functions involving the bathroom. Pooping and peeing specifically. See? I told you this was going to be about the shameful things I do. My mother would be horrified at this post — putting all of my most personal business on the Internet for the world to see. It’s not…
Spiritual Healing-We Don’t Need Another Savior
A New Name, A Deeper Purpose I’m changing the name of this blog from My Self-Healing Journey to My Spiritual Healing Journey. When I first began writing here, I had no idea where it would lead. I only knew I had to trust God—who instructed me to share my journey. I’ve always written only when…
And just like that
You find yourself back where you started.With a big chunk of time on your hands but nothing to do with it. I try to remember what I used to like doing before disability took over. I used to like to paint. Now I wonder how to accomplish a painting without making a giant mess. I…
Run, walk or roll at CMU toward a world free of MS
Dan and I always are excited to share stories about what the students from Central Michigan University’s Physical Therapy program are doing to support people within the Multiple Sclerosis community. Click image to register Let’s say the next generation of healthcare professionals is showing up in a big way this summer. On Saturday, July 19,…
Seeing through the woulds
Last week, Bruce Springsteen released his epic collection of previously unreleased songs, “Tracks II.” Listening to these recordings reminded me of how much his music has supported me through my journey life with Multiple Sclerosis and as Jennifer’s primary caregiver. This led me to think of an essay I wrote that was directly inspired by…
When you realize what’s happening…it’s grief fighting your quest for a life worth living
This never-ending pain. This constant sorrow. When it finally registers to you that grief has come home, and she sits herself down on your heart it almost feels like relief. You’ve been here before. It almost feels like home. Funny concept that one. Home. It’s where the heart is, correct? Or is it where your…
Calor extrema i esclerosi múltiple: com protegir-se de les altes temperatures
Amb l’arribada de l’estiu i l’increment de les onades de calor, moltes persones amb esclerosi múltiple (EM) poden experimentar un empitjorament temporal dels seus símptomes. Aquest fenomen, conegut com a fenomen d’Uhthoff, no indica una progressió de la malaltia, però sí que pot afectar de manera significativa el benestar i la qualitat de vida. Des…