Despite my urgency to find my footing in a world transformed by MS, I found myself in need of time and space to delve deeply within, to re-establish myself amidst an onslaught of new normals. Adapting to something so wildly unpredictable, the relentless cycle of adaptation was not only disheartening but also deeply confusing. Source:…
Category: Multiple Sclerosis Research
How I became an advocate for young people with MS
In recognition of Multiple Sclerosis Awareness Month in March, the MS Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by MS, written in their own words. Follow us on Facebook, Instagram, X, and Pinterest for more stories like this, using the hashtag #MSAwarenessMonth, or read the full series….
tolebrutinib extension study
Tweet Oh J, Fox RJ, Arnold DL, Syed S, Dukovic D, Vargas WS, Turner TJ, Underwood CF, Long TM, Traboulsee AL, Reich DS. Tolebrutinib Phase 2b Long-Term Extension Study: Two-Year Safety, MRI, and Clinical Efficacy Outcomes in Patients With Relapsing Multiple Sclerosis Patients. Neurol Open Access. 2025 ;1(3):e000028. Background and objectives: Tolebrutinib is an oral, brain-penetrant,…
Starting at age 8, MS has been the invisible illness invading my life
In recognition of Multiple Sclerosis Awareness Month in March, the MS Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by MS, written in their own words. Follow us on Facebook, Instagram, X, and Pinterest for more stories like this, using the hashtag #MSAwarenessMonth, or read the full series….
How does EBV cause MS?
Tweet In this latest offering from the Great and the Good we get their offering of the current neuroimmunological prespective Act 1. They tell us that “EBV has been associated with various autoimmune diseases, including multiple sclerosis (MS), rheumatoid arthritis (RA), systemic lupus erythematosus (SLE) and Sjogren’s Syndrome”. I buy this and so am weary…
‘Molecular atlas’ uses military blood samples to spot disease years early
A “molecular atlas” of disease that can predict illness years before symptoms appear is the goal of a massive new research project analyzing blood samples from U.S. military service members. Known as ORIGIN, the initiative uses stored samples from the Department of Defense to hunt for early warning signs of more than 25 conditions, including…
Living between the lines: MS, motherhood, and the invisible load
In recognition of Multiple Sclerosis Awareness Month in March, the MS Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by MS, written in their own words. Follow us on Facebook, Instagram, X, and Pinterest for more stories like this, using the hashtag #MSAwarenessMonth, or read the full series….
Spotting MS..Can Technology Change the Ludites
Tweet The biggest issue to progress is the slow process and resistance to change and this can be seen in how the regulators assess efficacy and here for many years people have been fixated with the EDSS clinical assessment, This study looks at technology and they can distinguish people with neurological issues compared to people…
Caregivers deserve some more detailed exploration here
I’ve written here before about my use of caregivers to do the most basic tasks required in my life. The minute I wake up in the morning till the time I go to bed at night I am not alone. I require help for the most basic of tasks from getting up out of a…
Trial of CAR T-cell therapy for progressive MS now recruiting in US
A Phase 1 clinical trial testing azercabtagene zapreleucel (azer-cel), TG Therapeutics’ CAR-T-cell therapy, in progressive forms of multiple sclerosis (MS) is now recruiting participants at eight sites across the U.S. The study (NCT06680037) is expected to enroll up to 32 adults with primary progressive MS or secondary progressive MS to determine whether genetically engineered immune…