Category: Multiple Sclerosis Research

Back To Reality September’s here, and welcome to Pumpkin Spice and Get-Your-Shit-Together season. First stop, physio. I never feel better than after I’ve seen Emran, my osteopath, except for last week when Emran told me I have tennis elbow.       “Cool,” I said, “something sporty.”       “Not cool,” Emran said. “Your arms are weaker every time I…

Is Self-Love Selfish? Let’s Chat. I saw a post on Facebook recently that asked,“What’s one piece of advice every child should get?” Without thinking twice, I wrote:“Love yourself unconditionally.” Later that day, I asked Jeremy what he’d say.He goes, “Be kind.” Also great advice. Nailed it. But then I told him mine, and he said,“Well,…

After 10 years, Tysabri is evolving to become simpler to administer. One of the strongest MS drugs, and up until a few years ago, the only ‘highly effective’ treatment available, has involved an afternoon spent in hospital every four weeks. Only dispensed at regional centres, it’s generally not even your local hospital – For me…

A fairly impulsive holiday to Marrakesh this spring, when I was just craving some heat and sun (and easyJet obviously sensed the vibe and launched sales). I didn’t expect an old African city to be super accessible, but it had got to the point where I thought sitting in a street at 30° was preferable…

My latest MS meltdown happened inside a trendy motel in the middle of nowhere Northern Ontario. The Banker and I were on a 2-day mini-break, but the break I really needed was from my body, and my body was like, “Yeah, that doesn’t work for me. I’m saving up for one of those tiny Lizzo…

On February 23-25, 2023, the eighth annual Americas Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS) forum took place in San Diego, California with the theme – MS: Going Viral. This was one of the largest ACTRIMS meetings to-date with over 1,800 participants in attendance, and over 50 presentations and 460 posters across various…

Guest post by: Lindsay Ireland  I believe in the power of perspective. Reframing the narrative in my head may not cure MS, but it has helped me live my best life. Living with three autoimmune diseases, this outlook has proven its value to me many times.    When I was diagnosed with relapsing-remitting MS in 2001,…

“I cried a lot when I was diagnosed. I was 22 years old, and I thought my life was over.   I went to the hospital after losing feeling in my right arm. While I was there, I lost feeling in my right side, from my shoulder to my hip. I had to learn how to…

“Over a decade ago, I experienced numbness in my legs, and it progressed until I had no feeling in my left foot. I remember my neurologist talking about MS while I stared at the Parkinson’s poster that was plastered on the wall behind him. I have MS? I tried to keep a straight face, but…

It must be that enough time had passed since I was last battling social services, that I found the confidence to think moving would be okay… After all, it’s a bungalow, it’s in the same town, just a few small alterations needed. Unfortunately, though, I think unless you’re in an accessible council house and unemployed,…