An honest conversation about death, dignity, and choosing how we go. Wow. I felt the temperature in the room shift—just at the mere mention of death. Why?! Why are we so damn scared to talk about this thing that is as inevitable as sunrise? Is it the unknown? The finality? The loss of control? Or…
El virus d’Epstein-Barr i els ganglis limfàtics cervicals: noves claus en l’origen de l’Esclerosi Múltiple
Un estudi recent publicat a Science Immunology ha identificat els ganglis limfàtics cervicals profunds com un possible punt d’origen de l’Esclerosi Múltiple (EM). La recerca suggereix que la reactivació del virus d’Epstein-Barr (VEB) en aquesta regió podria desencadenar una resposta immunitària errònia contra el sistema nerviós central. El VEB: més enllà de la mononucleosi…
This isn’t the end (my review of Ardra’s “Fallosophy”)
When another MS’r DOES good out in the world it deserves to be acknowledged. And that’s exactly what Adra from MS tripping on air has done with her new book Fallosophy. This is a lovely piece of writing which tells a story about a journey from normal to anything but as a young woman experiences…
From love at first sight to a focus on in-home care
Click the image above to watch the video on the IMPART Alliance YouTube channel. When I met Jennifer, I knew she was the one. But our story is about more than love at first sight. It’s also about the vital role of in-home caregivers and the difference they make in people’s lives every single day….
Tracking MS Symptoms – Why it Matters and How to Make it Work for YOu
Tracking MS symptoms matters for you if you live with the chronic disease of multiple sclerosis. Source: www.life-in-spite-of-ms.com
What Does MS Mean to You?
What does MS mean to you besides multiple sclerosis? Is it something positive? Negative? Or something inspirational? We’d love to know. Source: www.life-in-spite-of-ms.com
I’m Surviving, Not Inspiring
I can’t tell you how many times since I started using a wheelchair people have called me inspirational, or given me that “oh, bless her heart (for living)” look I’ve come to absolutely despise. Thinking about it this morning, I wondered—what is it that makes me inspirational now that I’m in a chair? I was…
A Couple’s Take: Why the discontinuation of MSRP funding is a blow to MS patients
Maybe we’re misunderstanding what Congress members mean when they justify their actions as “cutting wasteful spending” and “putting America first.” Because we still are confused about what they did on March 18. Making sure our voices are heard online, in person, and throughout the halls on Capitol Hill For background, we will tell you that…
Angry
Yvonne and the miserable, horrible, yucky, little good, very bad attitude Ah, it’s Lent again. A time of repentance, reconciliation, reflection and renewal. It is the saddest time and the happiest time. It is a time of despair and a time of hope. Yet what I have been reflecting on this March is the Rolling…
Remembering to Forget: Unlearning What Holds Us Back
Why Are We Here? Seriously—what is the purpose of life? Are we just here to go to school, get a job, pay bills, and hopefully have a little fun along the way before we die? You know who rarely questions their purpose? Young children. As they run across playgrounds, splash in puddles, and simply exist,…