Last week I was fortunate to be in Milan during ECTRIMS, the world’s largest MS research conference. I’ve just returned from my whirlwind trip, and I’m a little late sharing the first episode of season 2 of the podcast. Sick Little Secret: The Pros And Cons Of Coming Out With MS dropped Friday while I…
Forgive Me My Absence
Forgive Me My Absence I have no excuse. Here is something of an update. It’s the least I can do. My health has deteriorated at about the same pace as it has been deteriorating for the past 22 years. The problem is, I don’t have much runway left. But I have some. Above the neck,…
SPMS and My Body Image
Hi everyone, how are you all? Yet again it has been ages since I last posted and for that I … The post SPMS and My Body Image appeared first on . Source: trippingthroughtreacle.com
From MIA to TMI: I’m Back Spilling MS tea (and everything else for that matter)
Back To Reality September’s here, and welcome to Pumpkin Spice and Get-Your-Shit-Together season. First stop, physio. I never feel better than after I’ve seen Emran, my osteopath, except for last week when Emran told me I have tennis elbow. “Cool,” I said, “something sporty.” “Not cool,” Emran said. “Your arms are weaker every time I…
Radical Self-Love: Sacred, Not Selfish
Is Self-Love Selfish? Let’s Chat. I saw a post on Facebook recently that asked,“What’s one piece of advice every child should get?” Without thinking twice, I wrote:“Love yourself unconditionally.” Later that day, I asked Jeremy what he’d say.He goes, “Be kind.” Also great advice. Nailed it. But then I told him mine, and he said,“Well,…
Tysabri injections, nice idea
After 10 years, Tysabri is evolving to become simpler to administer. One of the strongest MS drugs, and up until a few years ago, the only ‘highly effective’ treatment available, has involved an afternoon spent in hospital every four weeks. Only dispensed at regional centres, it’s generally not even your local hospital – For me…
Latest information about Multiple Sclerosis
Multiple Sclerosis (MS) is a chronic, autoimmune disease that affects the central nervous system. It causes inflammation and damage to the myelin sheath, which is the protective covering around nerve fibers. This can lead to a variety of symptoms, including fatigue, muscle weakness, vision problems, and difficulty with coordination and balance. While there is currently…
Effects of Multiple Sclerosis
Symptoms of Multiple Sclerosis Multiple Sclerosis (MS) is a chronic autoimmune disease that affects the central nervous system. The symptoms of MS vary widely and depend on the location of the damage within the nervous system. Some common symptoms include fatigue, numbness or tingling in the limbs, muscle weakness, blurred vision, difficulty with balance and…
Marrakesh: when attitude outweighs infrastructure
A fairly impulsive holiday to Marrakesh this spring, when I was just craving some heat and sun (and easyJet obviously sensed the vibe and launched sales). I didn’t expect an old African city to be super accessible, but it had got to the point where I thought sitting in a street at 30° was preferable…
MS And The Fear Of Losing Independence
My latest MS meltdown happened inside a trendy motel in the middle of nowhere Northern Ontario. The Banker and I were on a 2-day mini-break, but the break I really needed was from my body, and my body was like, “Yeah, that doesn’t work for me. I’m saving up for one of those tiny Lizzo…