Multiple Sclerosis has taken a lot from me over the past 25 years. Building connections and relationships with elected officials, like with our State Senator Roger Hauck, is one way ennifer and I are using our voices following our MS diagnoses. I mean, I could’ve let that be the end of the story when it…
ECTRIMS 2025 Think Hand.
Tweet If you can cast your mind back to ECTRIMS 2016 in London…We were sat outside the Excel Centre in London making our poster for the next days poster session we had some helium balloons saying 95 percent, which was the number of people that were losing hand function with MS and it was part…
neurofilament the new imaging machine
Tweet Neurofilament is a marker of `nerve damage and so can spot sub clinical attacks, we have been using this for years to help detect active disease. somet;imes lesions cant be seen on MRI, van Pamelen J, Koel-Simmelink MJA, Lissenberg BI, Arnoldus EPJ, de Beukelaar J, van Vliet J, Killestein J, Teunissen CE, Visser LH….
Finding Clarity in Transition
Our blog theme this month is transitions, and that feels very appropriately timed for me. My kids are back in school (HOW IS MY BABY IN 1st GRADE?!) and I’ve recently found myself single. So, this is a tough post … Continue reading → Source: blog.mymsaa.org
Study finds most children with MS have slow-growing brain lesions
Most children with multiple sclerosis (MS) have chronic active lesions that slowly get bigger over time, and their frequency seems to correlate with the total number of lesions and reduced […] The post Study finds most children with MS have slow-growing brain lesions appeared first on Multiple Sclerosis News Today. Source: multiplesclerosisnewstoday.com
EBV causal or not?
Tweet Mendelian Randomization (MR) is a research method in epidemiology that uses genetic variants as instrumental variables to investigate causal relationships between an exposure and an outcome. By exploiting the random inheritance of genes, which is analogous to a randomized controlled trial, MR aims to minimize bias from confounding factors and reverse causation, allowing for stronger causal…
GFAP as a biomarker for neurological disease is it a pile of?
Tweet GFAP is glial acidic fibrillary acidic protein and is a marker of astrocytes. Neurofilament is a marker in nerves and in MS these proteins are released. I have associated these with nerve damage and there has been a great move to suggest that the release of GFAP is a marker of astrocyte activation and…
My Upcoming Webinar on Accessible Cruising
My Upcoming Webinar on Accessible Cruising After 33 accessible cruises, Kim and I finally decided to share our knowledge with the world. Sign up here for my upcoming webinar. You can watch it live on September 10, 2025 at 3:00 PM, or you can watch a recording at your leisure. Secrets will be revealed!…
Stand With The Victims
I would like to provide a disclaimer before you continue to read this post. This topic fills me with anger and rage because of the heinous and despicable crimes that were committed against innocent women. The so-called ring leaders in this reign of trauma and harm were a man (I use this term loosely) and…
Karen Pagen Cruz – MSAA’s September 2025 Artist of the Month
MSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Karen … Continue reading → Source: blog.mymsaa.org