For MS Awareness Week, I wrote a poem! This year’s theme is being unfiltered, so I wanted to share something that showed the wide range of things that MS can impact. Please be nice though. I never write poetry, I have never performed a poem, and Dizzy refused to help! (I forgot to put gingernut…

A Better Way to Measure MS Progression The Buffalo Neuroimaging Analysis Center (BNAC) is a world-class center for MS research. As with all academic research, however, it can be difficult for patients to read and understand their published reports.  I’m on the Patient Advisory Council for BNAC, and we have embarked on an effort to…

Who the FUCK am I?!?!? What the FUCK is the point of my life?!?!? I feel like I have been thrown into an existential crisis. Since losing the ability to walk, and the ability to do many of the things I enjoy due to Multiple Sclerosis, I often question who I am and what my…

….. is really, really difficult. I wasn’t sure how to start this blog post. I could start by saying sorry … The post Living with a Progressive Chronic illness…. appeared first on . 6 Tips to Keep Working at Your Health Goals – Despite Living with Chronic Illness Source: trippingthroughtreacle.com

Thoughts on Inspiration I don’t want to be an inspiration. I only want to inspire. If you exhibit visible MS symptoms then someone, somewhere, sometime may have called you an “inspiration.” I’ve been called worse, but I still don’t like it… To read my full blog post at MultipleSclerosis.net, click here. get the latest blog posts…

Dizzy and I were very lucky to have a very exciting opportunity recently. From the beginning of November, the MS Society was involved in a partnership with the Royal Ballet, where a group of individuals with MS came together from all over the country to create a ballet performance that would illustrate the hardships, turning…

 Phase 2 data published in NEJM show potential of frexalimab as high-efficacy therapy in relapsing MS High-dose frexalimab significantly reduced disease activity, demonstrating 89% reduction in new brain lesions Phase 3 trials in relapsing MS and non-relapsing secondary progressive MS currently underway Paris, February 15, 2024. The New England Journal of Medicine published results from a positive Phase…

Dizzy and I have not had the best time with our MS recently. After our relapse after Easter last year, we had a further MRI in November, which showed another relapse and further new lesions. This means we are now being bumped into the highly effective level of medications available, with our choice being between…

I am in total amazement that my disfunctional body grew a baby. With so many uncertainties from the conception, and my body already having lost so much function, it truly feels like the womb and nervous system operate entirely separately. The caesarean went well (the hardest part being holding my body in position for the…