CASA-MS: Something for Those of Us With a Lot of MS I would never say that someone has only a little multiple sclerosis. It’s a horrible disease in all its manifestations. But I’m quite comfortable in saying that a few of us have a whole lot of MS. The most severe types of MS have…

Mitch Sturgeon TEDx Talk I was recently asked to give a talk at a TEDx event at Cape Elizabeth High School. Of course, I couldn’t do it without Kim, who became the star of the show! get the latest blog posts emailed to you directly (function() { window.mc4wp = window.mc4wp || { listeners: [], forms:…

2022… what?! I know I’m not alone in feeling like the last two years don’t count. And I realise it’s already the end of February so hardly counts as the New Year any more. The last two years made it easy to fall into the isolation lifestyle where the days and weeks just slip by,…

3i Home – We are Interviewed About Accessible Housing My passion these days, and the primary reason I have been neglecting my blog of late, is accessible housing and 3i Housing of Maine. We have reached agreement on a site in Greater Portland and expect to break ground in the fall of this year on…

The post The Well-Being Guilt Trap appeared first on Life on a Seesaw. It dawned on me the other day. Without realising, I have been putting myself under a lot of pressure for what seems like forever. I have felt such guilt around diet and fitness regimes that I have not been able to stick…

The mid thirties baby bombardment is here, whether it’s the steady influx of friends/friends of friends/former school peers reproducing, or the targeted ads for maternity clothes and follow-on milk on my screens. I get that it feels like a huge decision for most people, but the extra complications of severe MS and disability are hard…

Why me? No matter how lasting or fleeting, it’s a question that we instinctively ask ourselves—myself included. But why? Perhaps the reason many of us open the can of “why me?” is because there is so much we have yet to learn about a disease with no known cause, no early detection, no predictable path of symptoms,…

The post 10 Activities for Parenting with Tiredness and Fatigue appeared first on Life on a Seesaw. Parenting is tough. It’s incredible and rewarding but it is also exhausting in equal measures. A chronic illness like Multiple Sclerosis adds another dimension. With fatigue one of the most common symptoms of MS, it can be hard…

My mouth is dry. My heart is pounding. I’m beginning to sweat. No, I’m not about to perform on a stage or give a speech to a roomful of people… and yet… everyone is looking at me—not at him—waiting, expecting me to do something. Or are they? I’ve just arrived at a small get together, hobbling in with…

July 1, 2013 Dear Cat, Look at you sitting there, tapping your feet and fidgeting with your hands in that cold, grey exam room. You’re moments away from receiving medical confirmation of that little monster that has been haunting you over the last few months, probably years: You have multiple sclerosis. But you already know that. Even so, hearing…