“We have no choice in how MS will affect our lives, but we do have the ability to stay in the game and play the cards we are dealt. Sure, this can involve some bluffing and making it look easier than it really is, but…
I have an obsession around bodily functions involving the bathroom. Pooping and peeing specifically. See? I told you this was going to be about the shameful things I do. My mother would be horrified at this post — putting all of my most personal business…
A New Name, A Deeper Purpose I’m changing the name of this blog from My Self-Healing Journey to My Spiritual Healing Journey. When I first began writing here, I had no idea where it would lead. I only knew I had to trust God—who instructed…
You find yourself back where you started.With a big chunk of time on your hands but nothing to do with it. I try to remember what I used to like doing before disability took over. I used to like to paint. Now I wonder how…
Dan and I always are excited to share stories about what the students from Central Michigan University’s Physical Therapy program are doing to support people within the Multiple Sclerosis community. Click image to register Let’s say the next generation of healthcare professionals is showing up…
Last week, Bruce Springsteen released his epic collection of previously unreleased songs, “Tracks II.” Listening to these recordings reminded me of how much his music has supported me through my journey life with Multiple Sclerosis and as Jennifer’s primary caregiver. This led me to think…
This never-ending pain. This constant sorrow. When it finally registers to you that grief has come home, and she sits herself down on your heart it almost feels like relief. You’ve been here before. It almost feels like home. Funny concept that one. Home. It’s…
Amb l’arribada de l’estiu i l’increment de les onades de calor, moltes persones amb esclerosi múltiple (EM) poden experimentar un empitjorament temporal dels seus símptomes. Aquest fenomen, conegut com a fenomen d’Uhthoff, no indica una progressió de la malaltia, però sí que pot afectar de…
252 days. June 14, 2025, marked 252 long days since my father, Victor, passed away. What can I say? He was a wonderful, smart, funny, and kind man, and I would be remiss if I didn’t mention that he was a good dancer. 😉 My…
When MS combines with visiting your heritage It is Portuguese Heritage Month!! To celebrate, Annmarie came up with a last-minute idea to visit Fall River, MA and get our Portuguese on. I did have plans to go dancing the night before with another friend, but…