Category: Multiple Sclerosis Research

The mid thirties baby bombardment is here, whether it’s the steady influx of friends/friends of friends/former school peers reproducing, or the targeted ads for maternity clothes and follow-on milk on my screens. I get that it feels like a huge decision for most people, but the extra complications of severe MS and disability are hard…

Why me? No matter how lasting or fleeting, it’s a question that we instinctively ask ourselves—myself included. But why? Perhaps the reason many of us open the can of “why me?” is because there is so much we have yet to learn about a disease with no known cause, no early detection, no predictable path of symptoms,…

The post 10 Activities for Parenting with Tiredness and Fatigue appeared first on Life on a Seesaw. Parenting is tough. It’s incredible and rewarding but it is also exhausting in equal measures. A chronic illness like Multiple Sclerosis adds another dimension. With fatigue one of the most common symptoms of MS, it can be hard…

My mouth is dry. My heart is pounding. I’m beginning to sweat. No, I’m not about to perform on a stage or give a speech to a roomful of people… and yet… everyone is looking at me—not at him—waiting, expecting me to do something. Or are they? I’ve just arrived at a small get together, hobbling in with…

July 1, 2013 Dear Cat, Look at you sitting there, tapping your feet and fidgeting with your hands in that cold, grey exam room. You’re moments away from receiving medical confirmation of that little monster that has been haunting you over the last few months, probably years: You have multiple sclerosis. But you already know that. Even so, hearing…

“I am invisible, understand, simply because people refuse to see me.” -Ralph Ellison, “Invisible Man” I’m 5 foot 8. Half of my head is shaved. I wear bold makeup and jewelry. I’m hard to miss. And yet somehow, I have managed to (quite literally) stumble upon the secret to attaining one of the superpowers I’d mentioned in another…

I tried not to make eye contact with her in the elevator while I pushed the button for the floor directly above us. I knew that it was bound to happen sooner or later, and I hoped that by not looking at her, she wouldn’t engage. But it did happen. It only happened just that…

Allow me to introduce you to Devin Stratton, a 25-year-old Utah man who captured himself on video accidentally falling off a 150-foot cliff while skiing. Horrifying, right? He surely didn’t survive and, if he did, he’s probably paralyzed or hooked up to countless machines keeping him alive… right? Nope. Devin walked away uninjured, without so…

One of my favorite books when I was a kid was a Choose Your Own Adventure book, in which I chased Carmen Sandiego all over the globe. Paragraph by paragraph, I decided what my next move would be in order to find her. It was fun and, without me knowing it at the time, it…

I will never forget the first time I felt “less than.” I was onstage and in costume, ready to perform for the very first time at the local Greek festival. Our dance troupe director was welcoming the audience and explaining the origin of our opening number. The girl standing next to me in line started to…